They’ve been BITTEN: reports of institutional and provider betrayal and links with Ehlers-Danlos Syndrome patients’ current symptoms, unmet needs and healthcare expectations
Introduction: Patients with rare and/or care-intensive conditions, such as Ehlers-Danlos Syndrome (EDS), can pose challenges to their healthcare providers (HCPs). The current study used the BITTEN framework 1 to code EDS patients’ open-ended written responses to a needs survey to determine their sel...
Kaydedildi:
| Asıl Yazarlar: | , , , , , , |
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| Materyal Türü: | Artigo |
| Dil: | Inglês |
| Baskı/Yayın Bilgisi: |
SAGE Publishing
2021-06-01
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| Seri Bilgileri: | Therapeutic Advances in Rare Disease |
| Online Erişim: | https://doi.org/10.1177/26330040211022033 |
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