Facilitating return of actionable genetic research results from a biobank repository: Participant uptake and utilization of digital interventions

Summary: Research participants report interest in receiving genetic research results. How best to return results remains unclear. In this randomized pilot study, we sought to assess the feasibility of returning actionable research results through a two-step process including a patient-centered digit...

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Hlavní autoři:	Lillian Phung, Elisabeth Wood, Brian Egleston, Lily Hoffman-Andrews, Demetrios Ofidis, Sarah Howe, Rajia Mim, Hannah Griffin, Dominique Fetzer, Anjali Owens, Susan Domchek, Reed Pyeritz, Bryson Katona, Staci Kallish, Giorgio Sirugo, JoEllen Weaver, Katherine L. Nathanson, Daniel J. Rader, Angela R. Bradbury
Médium:	Artigo
Jazyk:	Inglês
Vydáno:	Elsevier 2024-10-01
Edice:	HGG Advances
Témata:	Genetic Research Results Biobank Repository Actionable Genetic Findings Participant Uptake Digital Health Interventions Return of Research Results
On-line přístup:	http://www.sciencedirect.com/science/article/pii/S2666247724000861
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