A quantitative and qualitative analysis of patient group narratives suggests common biopsychosocial red flags of undiagnosed rare disease

Abstract Background The ‘diagnostic odyssey’ is a common challenge faced by patients living with rare diseases and poses a significant burden for patients, their families and carers, and the healthcare system. The diagnosis of rare diseases in clinical settings is challenging, with patients typicall...

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Үндсэн зохиолчид:	Mariam Al-Attar, Sondra Butterworth, Lucy McKay
Формат:	Artigo
Хэл сонгох:	Inglês
Хэвлэсэн:	BMC 2024-04-01
Цуврал:	Orphanet Journal of Rare Diseases
Нөхцлүүд:	Rare disease Biopsychosocial Diagnostic delay Diagnostic odyssey Clinical presentation Red flags
Онлайн хандалт:	https://doi.org/10.1186/s13023-024-03143-8
Шошгууд:	Шошго нэмэх Шошго байхгүй, Энэхүү баримтыг шошголох эхний хүн болох!