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Examining the daily experiences of parents caring for children with rare neurogenetic conditions using over 18,000 ecological momentary assessments

Abstract Parent caregivers of children with rare neurogenetic conditions experience daily challenges in meeting the needs of their child and family, though studies examining the daily experiences of caregivers are extremely limited. Here, we present pre-intervention ecological momentary assessment d...

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Autori principali: Lyndsey N. Graham, Heming Li, Stephen Tueller, Anne Wheeler, Dan Foti, Bridgette Kelleher
Natura: Artigo
Lingua:Inglês
Pubblicazione: Nature Portfolio 2026-05-01
Serie:Scientific Reports
Accesso online:https://doi.org/10.1038/s41598-026-49943-9
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