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A need for greater awareness: a mixed methods study of patient and healthcare professional perspectives on the diagnosis journey for haemophagocytic lymphohistiocytosis (HLH)

Objectives Our aim was to better understand and raise awareness of the diagnosis journey and quantify any barriers for timely diagnosis of haemophagocytic lymphohistiocytosis (HLH), to support patients’ struggle with diagnosis and reduce time to diagnosis.Methods Patients diagnosed with, or caregive...

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Главные авторы: Tracy Machado, Judith Lawrence, Daniel Eriksson, Jason Donohue
Формат: Artigo
Язык:Inglês
Опубликовано: Taylor & Francis Group 2024-12-01
Серии:Hematology
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Online-ссылка:https://www.tandfonline.com/doi/10.1080/16078454.2024.2358261
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