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Patient life aspirations in the context of Duchenne Muscular Dystrophy: a mixed-methods case–control study

Abstract Background Aspirations refer to wishes, ways of defining quality of life (QOL), and life goals. Living with chronic illness likely impacts a person’s life aspirations. Duchenne Muscular Dystrophy (DMD) is an inherited disorder characterized by the inevitable and progressive loss of ambulati...

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Autori principali: Carolyn E. Schwartz, Elijah Biletch, Richard B. B. Stuart, Bruce D. Rapkin
Natura: Artigo
Lingua:Inglês
Pubblicazione: SpringerOpen 2022-09-01
Serie:Journal of Patient-Reported Outcomes
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Accesso online:https://doi.org/10.1186/s41687-022-00500-8
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