From patients to partners: evaluating a co-designed website for congenital hypogonadotropic hypogonadism

Background: Patients with congenital hypogonadotropic hypogonadism (CHH) are geographically dispersed and have unmet health and informational needs. Patients often rely on the Internet to learn about CHH, find expert care, and connect with other patients. Aims: We partnered with patients to co-desig...

Ausführliche Beschreibung

Bibliografische Detailangaben

Hauptverfasser:	Andrew A Dwyer, Neil Smith, Samantha Strasser, Jordan N Keels, Isabella R McDonald, Jeanna Chi, Rich Le
Format:	Artigo
Sprache:	Inglês
Veröffentlicht:	Bioscientifica 2026-04-01
Schriftenreihe:	Endocrine Connections
Schlagworte:	kallmann syndrome patient participation patient empowerment rare diseases/syndromes user-centered design
Online-Zugang:	https://ec.bioscientifica.com/view/journals/ec/15/4/EC-26-0027.xml
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