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EUPID—configurable privacy-preserving record linkage in federated health data spaces

IntroductionRare disease research relies heavily on secondary use of health data due to the scarcity of clinical guidelines and data sharing between research institutions and hospitals. Linking rare disease patients is challenging due to increased re-identification risk in small cohorts, thus limiti...

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Principais autores: Dieter Hayn, Emanuel Sandner, Martin Baumgartner, Bernhard Jammerbund, Fabian Wiesmüller, Stefan Beyer, Hannah Vinatzer, Angelika Rzepka, Klaus Donsa, Karl Kreiner, Guenter Schreier
Formato: Artigo
Idioma:Inglês
Publicado em: Frontiers Media S.A. 2026-02-01
coleção:Frontiers in Digital Health
Assuntos:
European Health Data Space (EHDS)
findability accessibility interoperability re-usability (FAIR)
privacy-preservation
record linkage
secondary use
Acesso em linha:https://www.frontiersin.org/articles/10.3389/fdgth.2026.1751234/full
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