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Parent perspectives on neonatal research without prior consent: a mixed-methods interview study

Abstract Background Recruitment for clinical research in the neonatal intensive care unit (NICU) is difficult, which may lead to low enrollment rates, systematically skewed samples, and nongeneralizable results. Research without prior consent (RWPC), defined as obtaining consent only after infants h...

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Principais autores: Stephanie A. Kraft, Abigail Brickler, Abril Beretta, Rishabh Jain, Andrea Kelsh, Kaashif A. Ahmad, Justin T. Clapp, Neal W. Dickert, Rebecca A. Dorner, Katherine F. Guttmann, Anup C. Katheria, Stephanie K. Kukora, Benjamin A. Mooso, Elliott Mark Weiss, FAM-CONNECT Collaborative
Formato: Artigo
Idioma:Inglês
Publicado em: BMC 2026-04-01
Colecção:BMC Medical Ethics
Assuntos:
Informed consent
Waiver
Deferred consent
NICU
Neonatal
Clinical trials
Acesso em linha:https://doi.org/10.1186/s12910-026-01455-x
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