Reflections on youth partnership in a randomized controlled trial of an intervention to optimize transition from pediatric to adult care in inflammatory bowel disease

Background: Patient engagement allows for developing health interventions and research studies that align with the needs of people living with chronic diseases. Actively involving people with lived experience as partners in the design and governance of interventional trials is gaining prominence. Ho...

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Autors principals:	Brooke Allemang, PhD, MSW, RSW, Ashleigh Miatello, MA, Pranshu Maini, Joshua Eszczuk, Claudia Tersigni, MSc, Samantha Micsinszki, PhD, Sneha Dave, Natasha Bollegala, MD, MSc, FRCPC, Nancy Fu, MD, MHSc, Kate Lee, PhD, MBA, Samantha J. Anthony, PhD, MSW, RSW, Melanie Barwick, PhD, Eric I. Benchimol, MD, PhD
Format:	Artigo
Idioma:	Inglês
Publicat:	Elsevier 2025-01-01
Col·lecció:	Health Care Transitions
Matèries:	Adolescents Inflammatory bowel disease Patient engagement Patient-oriented research Transition to adult care Young adults
Accés en línia:	http://www.sciencedirect.com/science/article/pii/S2949923225000170
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