Research priorities for rare neurological diseases: a representative view of patient representatives and healthcare professionals from the European Reference Network for Rare Neurological Diseases
Abstract Background Patient involvement in research increases the impact of research and the likelihood of adoption in clinical practice. A first step is to know which research themes are important for patients. We distributed a survey on research priorities to ERN-RND members, both patient represen...
Shranjeno v:
| Principais autores: | , , , , , , |
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| Format: | Artigo |
| Jezik: | Inglês |
| Izdano: |
BMC
2021-03-01
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| Serija: | Orphanet Journal of Rare Diseases |
| Teme: | |
| Online dostop: | https://doi.org/10.1186/s13023-020-01641-z |
| Oznake: |
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