Evaluating parental personal utility of pediatric genetic and genomic testing in a diverse, multilingual population

Summary: There is increasing evidence of the clinical utility of genetic and genomic testing (GT); however, factors influencing personal utility of GT, especially in diverse, multilingual populations, remain unclear. We explored these factors in a diverse cohort of parents/guardians (participants) w...

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Principais autores:	Priya N. Marathe, Sabrina A. Suckiel, Katherine E. Bonini, Nicole R. Kelly, Laura Scarimbolo, Beverly J. Insel, Jacqueline A. Odgis, Monisha Sebastin, Michelle A. Ramos, Miranda Di Biase, Katie M. Gallagher, Kaitlyn Brown, Jessica E. Rodriguez, Nicole Yelton, Karla Lopez Aguiñiga, Michelle A. Rodriguez, Estefany Maria, Jessenia Lopez, Randi E. Zinberg, George A. Diaz, John M. Greally, Noura S. Abul-Husn, Laurie J. Bauman, Bruce D. Gelb, Melissa P. Wasserstein, Eimear E. Kenny, Carol R. Horowitz
格式:	Artigo
語言:	Inglês
出版:	Elsevier 2024-07-01
叢編:	HGG Advances
主題:	genomic testing pediatric genetic testing personal utility parents diversity genetic testing
在線閱讀:	http://www.sciencedirect.com/science/article/pii/S2666247724000605
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