Therapeutic trajectories of families with rare diseases in Chile from the perspectives of patients, carers, and healthcare workers: a qualitative study
Abstract Background Rare diseases are conditions that have a low prevalence in the population and a high disease burden and are often chronic and progressive. International evidence concerning the experience of people and families living with rare diseases is scarce, leading to late and erroneous di...
Gorde:
| Egile Nagusiak: | , , , |
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| Formatua: | Artigo |
| Hizkuntza: | Inglês |
| Argitaratua: |
BMC
2025-02-01
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| Saila: | Orphanet Journal of Rare Diseases |
| Gaiak: | |
| Sarrera elektronikoa: | https://doi.org/10.1186/s13023-025-03595-6 |
| Etiketak: |
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