Exploring Quality of Life in Adults Living With Late-onset Pompe Disease: A Combined Quantitative and Qualitative Analysis of Patient Perceptions from Australia, France, Italy, and the Netherlands
# Background Late-onset Pompe disease (LOPD) is a rare, autosomal recessive metabolic disorder that is heterogeneous in disease presentation and progression. People with LOPD report a significantly lower physical, psychological, and social quality of life (QoL) than the general population. # Object...
保存先:
| 主要な著者: | , , , , , , , , , , |
|---|---|
| フォーマット: | Artigo |
| 言語: | Inglês |
| 出版事項: |
Columbia Data Analytics, LLC
2025-01-01
|
| シリーズ: | Journal of Health Economics and Outcomes Research |
| オンライン･アクセス: | https://doi.org/10.36469/001c.126018 |
| タグ: |
タグなし, このレコードへの初めてのタグを付けませんか!
|