Measuring the impact of rare diseases in Tasmania, Australia
Abstract Background An ongoing challenge with rare diseases is limited data and, consequently, limited knowledge about the collective prevalence and impact of these conditions on individuals, families, and the health system, particularly in rural and regional areas. Using existing datasets, this pro...
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| Główni autorzy: | , , , , , , , , , |
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| Format: | Artigo |
| Język: | Inglês |
| Wydane: |
BMC
2024-10-01
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| Seria: | Orphanet Journal of Rare Diseases |
| Hasła przedmiotowe: | |
| Dostęp online: | https://doi.org/10.1186/s13023-024-03343-2 |
| Etykiety: |
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