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The research relationship: participant perspectives on consent in biobanking

Abstract Background This paper examines challenges associated with the governance of large-scale biobanks. As the collection and interrogation of population-scale data is increasingly positioned as a route to new understandings of health and disease, large-scale biobanks are becoming essential eleme...

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Hauptverfasser: Rachel Thompson, Kate Lyle, Gabrielle Samuel, Jo Holliday, Fenella Starkey, Susan Wallace, Anneke Lucassen
Format: Artigo
Sprache:Inglês
Veröffentlicht: BMC 2025-04-01
Schriftenreihe:BMC Medical Ethics
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Online-Zugang:https://doi.org/10.1186/s12910-025-01199-0
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