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Between guidelines and reality: expert neurologists’ perspectives on structural resources for ALS care in Germany

Abstract Background Amyotrophic lateral sclerosis (ALS) is a fatal motor neuron disease, leading to an inexorable decline in voluntary muscle function, and finally to death within 2–4 years. The provision of professional ALS care is a multifaceted and continually evolving challenge, including the ma...

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Principais autores: Katharina Linse, Dorothée Lulé, Florian Schöberl, Peter Reilich, Benjamin Ilse, Moritz Metelmann, Clemens Eickhoff, Sarah Bublitz, Stefan Lorenzl, Matthias Boentert, Susanne Petri, Annekathrin Rödiger, Uta Smesny, Joachim Wolf, Ute Weyen, Daniel Zeller, Johannes Dorst, André Maier, Thomas Meyer, Paul Lingor, Andreas Hermann, Martin Regensburger, Julian Großkreutz, Clemens Runge, Hanna Sophie Lapp, Maren Freigang, Maximilian Vidovic, Elisa Aust, Constanze Weber, René Günther
Format: Artigo
Sprog:Inglês
Udgivet: BMC 2026-04-01
Serier:Neurological Research and Practice
Fag:
Amyotrophic Lateral Sclerosis
Multidimensional care
Palliative care
Motor neuron disease
Psychosocial care
Healthcare system
Online adgang:https://doi.org/10.1186/s42466-026-00481-9
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