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Estimating mortality in rare diseases using a population-based registry, 2002 through 2019

Abstract Background Rare diseases (RD) are a heterogeneous group of diseases, sharing aspects of complexity. Prognosis is variable, even in individuals with the same disease. Real-world data on RD as a whole are scarce. The aim of this study is to provide data on mortality and survival for a substan...

Whakaahuatanga katoa

I tiakina i:
Ngā taipitopito rārangi puna kōrero
Ngā kaituhi matua: Monica Mazzucato, Laura Visonà Dalla Pozza, Cinzia Minichiello, Ema Toto, Andrea Vianello, Paola Facchin
Hōputu: Artigo
Reo:Inglês
I whakaputaina: BMC 2023-11-01
Rangatū:Orphanet Journal of Rare Diseases
Ngā marau:
Urunga tuihono:https://doi.org/10.1186/s13023-023-02944-7
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