Clinical features, disease burden and impact on quality of life in participants with mitochondrial encephalomyopathy

BackgroundMitochondrial encephalomyopathy (ME) is a rare genetic disorder that significantly impacts participants’ quality of life and places emotional and financial burdens on caregivers. However, the dynamics between perceived financial burden, disability, and caregiver strain are not fully unders...

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Autors principals:	John Sieh Dumbuya, Chuan Tian, Lin Deng, Bashir Ahmad, Xiuling Chen, Jun Lu
Format:	Artigo
Idioma:	Inglês
Publicat:	Frontiers Media S.A. 2025-07-01
Col·lecció:	Frontiers in Neurology
Matèries:	mitochondrial encephalomyopathy rare diseases caregiver burden financial burden quality of life assessment scales
Accés en línia:	https://www.frontiersin.org/articles/10.3389/fneur.2025.1585906/full
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