Living with rare genetic disease during the COVID-19 pandemic: A qualitative study of adolescents and young adults with Li-Fraumeni syndrome

Background: The COVID-19 pandemic caused large-scale shifts in healthcare access and delivery that impacted the availability of routine care, such as cancer screening. Vulnerable populations, including those with rare cancer-prone genetic disease, faced considerable difficulties in managing their ca...

وصف كامل

التفاصيل البيبلوغرافية

المؤلفون الرئيسيون:	Allison Werner-Lin, Payal P. Khincha, Ashley S. Thompson, Camella Rising, Alix Sleight, Catherine Wilsnack, Patrick Boyd, Alexandra Feldman, Rowan Forbes Shepherd, Sharon A. Savage
التنسيق:	Artigo
اللغة:	Inglês
منشور في:	Elsevier 2024-01-01
سلاسل:	Rare
الموضوعات:	Adolescents and young adults (AYA) Inherited cancer predisposition syndromes Li-Fraumeni syndrome Pandemic Telehealth Mental health
الوصول للمادة أونلاين:	http://www.sciencedirect.com/science/article/pii/S2950008724000176
الوسوم:	إضافة وسم لا توجد وسوم, كن أول من يضع وسما على هذه التسجيلة!