Epistaxis burden in hereditary hemorrhagic telangiectasia: Validation and refinement of the NOSE-HHT

Background: Epistaxis is the most common and burdensome manifestation of hereditary hemorrhagic telangiectasia (HHT). Bleeding severity measures do not capture the functional and emotional impact of recurrent epistaxis, highlighting the need for symptom-specific patient-reported outcome measures. Th...

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Autors principals:	Ole Jakob Jørgensen, Johan Edvard Steineger, Amy Østertun Geirdal, Sinan Dheyauldeen
Format:	Artigo
Idioma:	Inglês
Publicat:	Elsevier 2026-07-01
Col·lecció:	American Journal of Otolaryngology
Matèries:	Hereditary hemorrhagic telangiectasia Epistaxis Patient-reported outcomes Validation Quality of life
Accés en línia:	http://www.sciencedirect.com/science/article/pii/S0196070926000918
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