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Linking the National Down Syndrome Cytogenetic Register to Hospital Episode Statistics: Methods and challenges

Background Linking national disease and congenital anomaly registers to other routinely collected data could provide multiple benefits. It could allow researchers to examine long-term outcomes for people with registered conditions and to explore synergies between services that are provided in differ...

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Autori principali: James Doidge, Joan Morris, Ruth Gilbert
Natura: Artigo
Lingua:Inglês
Pubblicazione: Swansea University 2018-06-01
Serie:International Journal of Population Data Science
Accesso online:https://ijpds.org/article/view/480
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