The experiences of patients with Duchenne muscular dystrophy in facing and learning about their clinical conditions

Patients experience extreme difficulty when facing an intractable genetic disease. Herein, we examine the experiences of patients with Duchenne muscular dystrophy in facing and learning about their disease. A total of seven patients with Duchenne muscular dystrophy (age range: 20–48) participated. W...

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Detalhes bibliográficos

Principais autores:	Haruo Fujino, Yuko Iwata, Toshio Saito, Tsuyoshi Matsumura, Harutoshi Fujimura, Osamu Imura
Formato:	Artigo
Idioma:	Inglês
Publicado em:	Taylor & Francis Group 2016-10-01
coleção:	International Journal of Qualitative Studies on Health & Well-Being
Assuntos:	Duchenne muscular dystrophy health communication genetic disease narration qualitative study
Acesso em linha:	http://www.ijqhw.net/index.php/qhw/article/view/32045/49043
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