A novel child-centred core palliative care outcome measure for use in clinical practice and research: findings from a multinational validation study

Abstract Background Outcome measurement is pivotal to person-centred assessment, quality improvement and research. Children and young people with life-limiting and -threatening illness have high needs and service use, yet there is a lack of evidence for interventions and care models. Efforts to stre...

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Principais autores:	Eve Namisango, Fliss E. M. Murtagh, Katherine Bristowe, Julia Downing, Richard A. Powell, Mackuline Atieno, Margaret Sandham, Zipporah Ali, Michelle Meiring, Faith N. Mwangi-Powell, Melanie Abbas, Lorna K. Fraser, Irene J. Higginson, Richard Harding
Formato:	Artigo
Idioma:	Inglês
Publicado em:	BMC 2025-04-01
Colecção:	Health and Quality of Life Outcomes
Assuntos:	Paediatric palliative care Outcome measurement Children Africa
Acesso em linha:	https://doi.org/10.1186/s12955-025-02346-2
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