A Cross-sectional Study on Quality of Life in EB: Validation of the Italian QOLEB and Assessment in Italian Patients

Inherited epidermolysis bullosa comprises a heterogeneous group of skin fragility diseases, presenting with a range of manifestations and complications that profoundly affect quality of life (QoL). A disease-specific instrument, Quality of Life in EB (QOLEB), has been developed to assess the impact...

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Hlavní autoři:	Giovanna Zambruno, Tonia Samela, Andrea Diociaiuti, Gudrun Salamon, Sophie Strobl, Cinzia Pilo, Damiano Abeni, Renata Linertová, Dedee F. Murrell, May El Hachem
Médium:	Artigo
Jazyk:	Inglês
Vydáno:	Medical Journals Sweden 2026-06-01
Edice:	Acta Dermato-Venereologica
Témata:	Epidermolysis bullosa health-related quality of life pain patient-reported outcome measure symptom burden female
On-line přístup:	https://medicaljournalssweden.se/actadv/article/view/46394
Tagy:	Přidat tag Žádné tagy, Buďte první, kdo vytvoří štítek k tomuto záznamu!