Angioedema due to acquired C1 inhibitor deficiency: patient experience, conceptual disease model, and assessment of patient-reported outcome measures

BackgroundAngioedema due to acquired C1 inhibitor deficiency (AAE-C1INH) is a rare, serious condition that manifests with recurring and often painful swelling attacks. No approved treatments or validated patient-reported outcome (PRO) measures exist for AAE-C1INH. This study aimed to develop a conce...

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Autori principali:	Mats de Lange, Danny M. Cohn, Delphine Gobert, Marc A. Riedl, Andrea Zanichelli, Kelsie Brewer, Sarah Clifford, Swaha Pattanaik, Beverly Romero, Maggie Chen, Joan Mendivil
Natura:	Artigo
Lingua:	Inglês
Pubblicazione:	Frontiers Media S.A. 2026-05-01
Serie:	Frontiers in Immunology
Soggetti:	angioedema bradykinin C1 inhibitor deficiency patient-reported outcomes PGI-C
Accesso online:	https://www.frontiersin.org/articles/10.3389/fimmu.2026.1810851/full
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