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Identifying aspects of palliative and end-of-life care that are most important to people with lived experience and can be measured using routine data: a series of patient and public involvement workshops

Abstract Background We aimed to identify which aspects of palliative and end-of-life care are most important to people with lived experience of life-limiting conditions and can be measured using routine data currently available in the UK. Methods Informed by a rapid umbrella scoping review and searc...

Ausführliche Beschreibung

Gespeichert in:
Hauptverfasser: Lesley E. Williamson, Georgina Macdonald, Joanna M. Davies, Rashmi Kumar, Margaret Ogden, Kamil Sterniczuk, Samina Begum, Mina Tanna, Peter May, Lorna K. Fraser, Fliss E. M. Murtagh, Irene J. Higginson, Katherine E. Sleeman
Format: Artigo
Sprache:Inglês
Veröffentlicht: SpringerOpen 2026-04-01
Schriftenreihe:Journal of Patient-Reported Outcomes
Schlagworte:
Public involvement
Routinely collected health data
Palliative care
End of life care
Quality of health care
Online-Zugang:https://doi.org/10.1186/s41687-026-01057-6
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