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Youth and family involvement in the development of a plain language trial results communication tool: CommuniKIDS

Abstract Background Pediatric trials are possible through voluntary participation of children, youth (age ≤ 18 years), and their families. Despite important arguments for trialists to provide trial progress or results, and evidence that participants desire it, this information remains rarely shared...

Ausführliche Beschreibung

Gespeichert in:
Hauptverfasser: Ami Baba, Dawn P. Richards, Maureen Smith, Nicole Pallone, Shelley Vanderhout, Matthew Prebeg, Ellen B. M. Elsman, Beth K. Potter, Martin Offringa, Nancy J. Butcher
Format: Artigo
Sprache:Inglês
Veröffentlicht: BMC 2023-09-01
Schriftenreihe:Research Involvement and Engagement
Schlagworte:
Patient and public involvement (PPI)
Youth engagement
Family engagement
Patient engagement
Clinical trials
Plain language summary
Online-Zugang:https://doi.org/10.1186/s40900-023-00499-2
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