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The adolescent experience of hereditary angioedema: a qualitative study of disease burden and treatment experience

Abstract Background Hereditary angioedema (HAE) is a rare, autosomal dominant disorder causing swelling attacks in various parts of the body, resulting in impacts on health-related quality of life (HRQoL). The symptoms of HAE and its impacts on HRQoL have been well-documented in adults; however, rel...

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Principais autores: Lynne Broderick, April Foster, Laura Tesler Waldman, Laura Bordone, Aaron Yarlas
פורמט: Artigo
שפה:Inglês
יצא לאור: BMC 2025-01-01
סדרה:Orphanet Journal of Rare Diseases
נושאים:
Hereditary angioedema
Disease burden
Qualitative research
Quality of life
HRQoL
Treatment experience
גישה מקוונת:https://doi.org/10.1186/s13023-025-03539-0
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