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Patient and carer perceptions of video, telephone and in-person clinics for Phenylketonuria (PKU)

Abstract Background In phenylketonuria (PKU), attending multidisciplinary clinic reviews is an important aspect of life-long care. Since the COVID-19 pandemic, video and telephone clinics are used as alternative methods for people with PKU to have contact with their care team. There is limited resea...

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Main Authors: Hannah McBride, Sharon Evans, Alex Pinto, Anne Daly, Catherine Ashmore, Fatma Ilgaz, Suzanne Ford, Sharon Buckley, Anita MacDonald
Format: Artigo
Language:Inglês
Published: BMC 2024-08-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Phenylketonuria
PKU
Review clinic
Video clinics
Telephone clinics
In-person clinics
Online Access:https://doi.org/10.1186/s13023-024-03295-7
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