Pediatric palliative care for metabolic diseases: 20‐year epidemiological survey of outpatients at a Brazilian quaternary hospital

Abstract The interface between pediatric palliative care (PPC) and inborn metabolic diseases (IMD) remains incipient, though these conditions fill the state of art of complex chronic diseases, eligible to this health approach. We analyzed the medical records of PPC clinic during the years 2001 to 20...

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Bibliografiske detaljer

Principais autores:	Gustavo Marquezani Spolador, Clarissa Bueno, Rita Tiziana Verardo Polastrini, Ivete Zoboli, Ana Cristina Henrique, Elaine Freitas, Andréa Gislene doNascimento, Camila Pugliese, Fernando Kok, Silvia Maria de Macedo Barbosa
Format:	Artigo
Sprog:	Inglês
Udgivet:	Wiley 2024-05-01
Serier:	JIMD Reports
Fag:	inborn errors of metabolism metabolic diseases metabolism palliative care pediatric palliative care pediatrics
Online adgang:	https://doi.org/10.1002/jmd2.12417
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