Rare disease, common struggles: quality of life, caregiver burden and financial wellbeing of family caregivers in Poland
Abstract Caregivers of persons with rare diseases (RDs) face elevated stress levels, caregiver burden (CB), financial pressure, and decreased quality of life (QoL). Since the Polish Rare Diseases Plan for 2024–2025 does not address caregivers’ psychosocial needs, this study aimed to assess the exper...
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| Autors principals: | , , |
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| Format: | Artigo |
| Idioma: | Inglês |
| Publicat: |
Nature Portfolio
2025-07-01
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| Col·lecció: | Scientific Reports |
| Matèries: | |
| Accés en línia: | https://doi.org/10.1038/s41598-025-08866-7 |
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