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Development of a Nationally Agreed Core Clinical Dataset for Childhood Onset Uveitis

BackgroundChildhood onset uveitis comprises a group of rare inflammatory disorders characterized by clinical heterogeneity, chronicity, and uncertainties around long term outcomes. Standardized, detailed datasets with harmonized clinical definitions and terminology are needed to enable the clinical...

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Päätekijät: Ameenat Lola Solebo, Salomey Kellett, Jugnoo Rahi, Reshma Pattani, Clive Edelsten, Andrew D. Dick, Alastair Denniston, The Pediatric Ocular Inflammation UNICORN Study Group, Ms Ameenat Lola Solebo, Ms Salomey Kellett, Professor Andrew D Dick, Professor Jugnoo Rahi, Professor Alastair Denniston, Mr Damien C.M. Yeo, Mr Jose Gonzalez-Martin, Ms Eibhlin McLoone, Prof Rachel Pilling, Mr John Bradbury, Prof Athimalaipet V Ramanan, Ms Catherine Guly, Ms Brinda Muthusamy, Mr Patrick Watts, Ms Christine Twomey, Ms Reshma Pattani, Mr Clive Edelsten, Mr Daniel Pharoah, Mr Vernon Long, Mr Adam Bates, Ms Elisabetta Scoppettuolo, Prof Jane Ashworth, Ms Laura Steeples, Mr Harry Petrushkin, Ms Dhanes Thomas, Mr Alan John Connor, Dr Una O'Colmain, Mr Anas Injarie, Mr Narman Puvanachandra, Ms Archana Pradeep, Ms Srilakshmi Sharma, Dr Conrad Schmoll, Dr Eoghan Millar, Mrs Kate Bush, Mr M. Ashwin Reddy, Ms Jessy Choi, Ms Gisella Cooper, Ms Kristina May, Mr Ed Hughes, Ms Ailsa Ritchie
Aineistotyyppi: Artigo
Kieli:Inglês
Julkaistu: Frontiers Media S.A. 2022-06-01
Sarja:Frontiers in Pediatrics
Aiheet:
uveitis
child
consensus
data collection
dataset
electronic health record
Linkit:https://www.frontiersin.org/articles/10.3389/fped.2022.881398/full
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