Research participants’ experiences with return of genetic research results and preferences for web‐based alternatives

Abstract Background While there is increasing interest in sharing genetic research results with participants, how best to communicate the risks, benefits and limitations of research results remains unclear. Methods Participants who received genetic research results answered open and closed‐ended que...

ver descrição completa

Detalhes bibliográficos

Principais autores:	Jill B. Gaieski, Linda Patrick‐Miller, Brian L. Egleston, Kara N. Maxwell, Sarah Walser, Laura DiGiovanni, Jamie Brower, Dominique Fetzer, Amanda Ganzak, Danielle McKenna, Jessica M. Long, Jacquelyn Powers, Jill E. Stopfer, Katherine L. Nathanson, Susan M. Domchek, Angela R. Bradbury
Formato:	Artigo
Idioma:	Inglês
Publicado em:	Wiley 2019-09-01
Colecção:	Molecular Genetics & Genomic Medicine
Assuntos:	genetic counseling genetic testing preferences for return of genetic research results return of genetic research results web‐based alternatives to genetic counseling
Acesso em linha:	https://doi.org/10.1002/mgg3.898
Tags:	Adicionar Tag Sem tags, seja o primeiro a adicionar uma tag!