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Structured care after a DSD diagnosis in childhood: a mixed methods evaluation of the Empower-DSD program

IntroductionDifferences of sex development (DSD) encompass several rare diagnoses with medical and social implications. If a child is suspected of having DSD, timely and comprehensive information to the family is crucial for an undisturbed parent-child relationship and a good outcome. Providing info...

Ausführliche Beschreibung

Gespeichert in:
Hauptverfasser: Katja Wechsung, Louise Marshall, Martina Jürgensen, Sabine Wiegmann, Ute Kalender, Manuela Brösamle, Gloria Herrmann, Olaf Hiort, Gerda Janssen-Schmidchen, Annette Richter-Unruh, Martin Wabitsch, Charlotte Wunn, Thomas Keil, Uta Neumann, Barbara Stöckigt
Format: Artigo
Sprache:Inglês
Veröffentlicht: Frontiers Media S.A. 2025-03-01
Schriftenreihe:Frontiers in Pediatrics
Schlagworte:
DSD
sex development
shared decision-making
structured care
information transfer
support
Online-Zugang:https://www.frontiersin.org/articles/10.3389/fped.2025.1488411/full
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