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Unmet needs in the management of hereditary angioedema from the perspective of Brazilian patients

Introduction: Hereditary angioedema (HAE) is a rare genetic disease characterized by recurrent, potentially life-threatening angioedema episodes. Despite its severity, including the risk of asphyxiation, HAE often remains underdiagnosed. The disease significantly impacts patient quality of life (QoL...

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Principais autores: Pedro Giavina-Bianchi, MD, PhD, Mara Giavina-Bianchi, MD, PhD, Raquel de Oliveira Martins, Maria Cristina Fortunato, PharmD, Ana Claudia Guersoni, MD, PhD
Format: Artigo
Sprog:Inglês
Udgivet: Elsevier 2024-11-01
Serier:World Allergy Organization Journal
Fag:
Hereditary angioedema
C1 inhibitor deficiency
Morbidity and mortality
Self-report questionnaire
Unmet needs
Quality of life. angioedemas
Online adgang:http://www.sciencedirect.com/science/article/pii/S1939455124001248
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