Study Protocol for the Development of a European eHealth Platform to Improve Quality of Life in Individuals With Huntington's Disease and Their Partners (HD-eHelp Study): A User-Centered Design Approach

Background: Huntington's disease (HD) is an autosomal dominant neurodegenerative disease that affects the quality of life (QoL) of HD gene expansion carriers (HDGECs) and their partners. Although HD expertise centers have been emerging across Europe, there are still some important barriers to care p...

ver descrição completa

Detalhes bibliográficos

Principais autores:	Pearl J. C. van Lonkhuizen, Niko J. H. Vegt, Eline Meijer, Erik van Duijn, Susanne T. de Bot, Jiří Klempíř, Wiebke Frank, G. Bernhard Landwehrmeyer, Alzbeta Mühlbäck, Jennifer Hoblyn, Ferdinando Squitieri, Peter Foley, Niels H. Chavannes, Anne-Wil Heemskerk
Formato:	Artigo
Idioma:	Inglês
Publicado em:	Frontiers Media S.A. 2021-09-01
coleção:	Frontiers in Neurology
Assuntos:	Huntington disease neurodegenerative diseases telemedicine eHealth user-centered design quality of life
Acesso em linha:	https://www.frontiersin.org/articles/10.3389/fneur.2021.719460/full
Tags:	Adicionar Tag Sem tags, seja o primeiro a adicionar uma tag!