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Characteristics of adult individuals with Rett syndrome treated or untreated with trofinetide in the United States

BackgroundRett syndrome (RTT) is a rare, progressive MECP2-related neurodevelopmental disorder with substantial lifelong morbidity that persists into adulthood. Although survival has improved, adults often experience evolving multisystem complications and fragmented transition care. Trofinetide (TRO...

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Hoofdauteurs: Nazia Rashid, Alyssa Peckham, Vinod Kumar Yakkala, Louise Cosand, Krithika Rajagopalan
Formaat: Artigo
Taal:Inglês
Gepubliceerd in: Frontiers Media S.A. 2026-07-01
Reeks:Frontiers in Neurology
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Online toegang:https://www.frontiersin.org/articles/10.3389/fneur.2026.1856312/full
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