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Shaping national rare diseases definition in Saudi Arabia: outcome from health ecosystem multisectoral workshop

IntroductionRare diseases are characterized by low prevalence, a profound impact on patients, and significant challenges in accessing treatment. In Saudi Arabia, the absence of an official definition hampers policymaking, resource allocation, and orphan drugs accessibility. This study aimed to addre...

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Principais autores: Ghada Mohammed Abozaid, Hussain Abdulrahman Al-Omar, Abdulaziz Alrabiah, Hiba Alomary, Amy Jayne McKnight
Formato: Artigo
Idioma:Inglês
Publicado: Frontiers Media S.A. 2025-07-01
Series:Frontiers in Pharmacology
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Acceso en liña:https://www.frontiersin.org/articles/10.3389/fphar.2025.1595967/full
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