Economic burden and health-related quality of life in patients with epidermolysis bullosa in Spain

Abstract Background . Epidermolysis bullosa (EB) is a rare genetic skin disorder characterized by fragility of skin with appearance of acute and chronic wounds. The aim of this study was to determine the economic burden and the health-related quality of life (HRQoL) of patients with epidermolysis bu...

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Auteurs principaux:	Isaac Aranda-Reneo, Juan Oliva-Moreno, Luz María Peña-Longobardo, Álvaro Rafael Villar-Hernández, Julio López-Bastida
Format:	Artigo
Langue:	Inglês
Publié:	BMC 2024-09-01
Collection:	Orphanet Journal of Rare Diseases
Sujets:	Epidermolysis bullosa (EB) Cost-of-illness Health-related quality of life Economic burden Productivity loss Informal care
Accès en ligne:	https://doi.org/10.1186/s13023-024-03328-1
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