Health care, social, educational, and employment needs of individuals affected by rare diseases and their families in Catalonia, Spain
Abstract Background Over 7,000 rare diseases affect about 30 million people in the European Union. Living with a rare disease requires interdisciplinary care and multiple services from public systems. It is essential to have updated information about individuals affected and their families, as their...
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| Hauptverfasser: | , , , , , , , |
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| Format: | Artigo |
| Sprache: | Inglês |
| Veröffentlicht: |
BMC
2026-02-01
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| Schriftenreihe: | Orphanet Journal of Rare Diseases |
| Schlagworte: | |
| Online-Zugang: | https://doi.org/10.1186/s13023-026-04281-x |
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