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Content validation of the Angioedema Quality of Life Questionnaire (AE-QoL) in a population of adult and adolescent patients with hereditary angioedema (HAE)

Abstract Background There is a lack of clear evidence pointing to a fit-for-purpose instrument to measure impacts on health-related quality of life (HRQoL) in adult and adolescent patients with hereditary angioedema (HAE). The purpose of this study was to determine whether the Angioedema Quality of...

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Autors principals: Lynne Broderick, April Foster, Laura Tesler Waldman, KD Jacobs, Laura Bordone, Aaron Yarlas
Format: Artigo
Idioma:Inglês
Publicat: SpringerOpen 2025-04-01
Col·lecció:Journal of Patient-Reported Outcomes
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Accés en línia:https://doi.org/10.1186/s41687-025-00876-3
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