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Understanding the relationship between the 32-item motor function measure and daily activities from an individual with spinal muscular atrophy and their caregivers’ perspective: a two-part study

Abstract Background The 32-item Motor Function Measure (MFM32) is a clinician-reported outcome measure used to assess the functional abilities of individuals with neuromuscular diseases, including those with spinal muscular atrophy (SMA). This two-part study explored the relationship between the fun...

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Kaydedildi:
Asıl Yazarlar: Tina Duong, Jessica Braid, Hannah Staunton, Aurelie Barriere, Fani Petridis, Johannes Reithinger, Rosangel Cruz, Jill Jarecki, Mencia De Lemus, Nicole Gusset, Ria Broekgaarden, Sharan Randhawa, Jessica Flynn, Rob Arbuckle, Sonia Reif, Lida Yang, Angela De Martini, Carole Vuillerot
Materyal Türü: Artigo
Dil:Inglês
Baskı/Yayın Bilgisi: BMC 2021-03-01
Seri Bilgileri:BMC Neurology
Konular:
Spinal muscular atrophy
32-item motor function measure
Content validity
Qualitative interviews
Quantitative online survey
Clinical meaningfulness
Online Erişim:https://doi.org/10.1186/s12883-021-02166-z
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