Barriers and facilitating factors of care coordination for children with spinal muscular atrophy type I and II from the caregivers' perspective: an interview study

Abstract Background Children with medical complexity (CMC) require long-term care accompanied by different health- and social care professionals. Depending on the severity of the chronic condition, caregivers spend a lot of time coordinating appointments, communicating between providers, clarifying...

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Autors principals:	Jana Willems, Isabella Bablok, Erik Farin-Glattacker, Thorsten Langer
Format:	Artigo
Idioma:	Inglês
Publicat:	BMC 2023-06-01
Col·lecció:	Orphanet Journal of Rare Diseases
Matèries:	Children with medical complexity Spinal muscular atrophy Rare diseases Care coordination Semi-structured interviews
Accés en línia:	https://doi.org/10.1186/s13023-023-02739-w
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