Identification of the most relevant aspects of spinal muscular atrophy (SMA) with impact on the quality of life of SMA patients and their caregivers: the PROfuture project, a qualitative study

Abstract Background SMA is a hereditary neuromuscular disease that causes progressive muscle weakness and atrophy. Several studies have shown that the burden of SMA is very high at many levels. Functional assessment tools currently used do not completely address the impact of the disease in patients...

Celý popis

Podrobná bibliografie

Hlavní autoři:	Mencía de Lemus, Maria G. Cattinari, Samuel I. Pascual, Julita Medina, Mar García, Ana Magallón, María Dumont, Pablo Rebollo
Médium:	Artigo
Jazyk:	Inglês
Vydáno:	SpringerOpen 2024-07-01
Edice:	Journal of Patient-Reported Outcomes
Témata:	Spinal muscular atrophy Outcome measures Quality of life Scales Patient reported outcomes
On-line přístup:	https://doi.org/10.1186/s41687-024-00758-0
Tagy:	Přidat tag Žádné tagy, Buďte první, kdo vytvoří štítek k tomuto záznamu!