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Lived Experiences of Fragile X Syndrome Caregivers: A Scoping Review of Qualitative Studies

Fragile X Syndrome (FXS) is the most common x-linked monogenic cause of Intellectual Disability (ID) and Autism Spectrum Disorder (ASD). Taking care of children with ID is challenging and overwhelming due to the multiple facets of caregiving. This scoping review aimed at summarizing the qualitative...

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Main Authors: Karen Kengne Kamga, Jantina De Vries, Seraphin Nguefack, Syntia Nchangwi Munung, Ambroise Wonkam
Format: Artigo
Language:Inglês
Published: Frontiers Media S.A. 2020-02-01
Series:Frontiers in Neurology
Subjects:
fragile X syndrome
lived experience
care givers
scoping review
qualitative research
Online Access:https://www.frontiersin.org/article/10.3389/fneur.2020.00128/full
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