Operational and Ethical Considerations for a National Adult Congenital Heart Disease Database

As more adults survive with congenital heart disease, the need to better understand the long‐term complications, and comorbid disease will become increasingly important. Improved care and survival into the early and late adult years for all patients equitably requires accurate, timely, and comprehen...

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Autors principals:	Elisa A. Bradley, Abigail Khan, Demetria M. McNeal, Katia Bravo‐Jaimes, Amber Khanna, Stephen Cook, Alexander R. Opotowsky, Anitha John, Marc Lee, Sara Pasquali, Curt J. Daniels, Michael Pernick, James N. Kirkpatrick, Michelle Gurvitz
Format:	Artigo
Idioma:	Inglês
Publicat:	Wiley 2022-04-01
Col·lecció:	Journal of the American Heart Association: Cardiovascular and Cerebrovascular Disease
Matèries:	ACHD Big Data ethics quality
Accés en línia:	https://www.ahajournals.org/doi/10.1161/JAHA.121.022338
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