Ethical challenges of capacity assessment in neurodevelopmental and intellectual disabilities

Abstract Individuals with neurodevelopmental disorders and intellectual disabilities face research exclusion due to complex consent processes. This article highlights how fluctuating capacity challenges binary assessment models. We propose ongoing capacity monitoring, independent consent monitors, a...

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Hlavní autoři:	Jonathan D. Santoro, Lilia Kazerooni, Maeve C. Lucas, Jenny Kingsley, Michael S. Rafii
Médium:	Artigo
Jazyk:	Inglês
Vydáno:	BMC 2026-05-01
Edice:	BMC Medical Ethics
Témata:	Informed consent Capacity Disability Neurodevelopmental disorders Intellectual disability Capacity assessment
On-line přístup:	https://doi.org/10.1186/s12910-026-01481-9
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