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“It to Sell the data”: Ethical and social perspectives on human genomic data sharing in Uganda—A phenomenological qualitative study

While genomic data sharing enhances transparency and research efficiency, it also raises significant ethical and social challenges. This study explored stakeholders’ perspectives on these issues, particularly around privacy, confidentiality, and equity in collaborative research. A phenomenological q...

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Hlavní autoři: Deborah Ekusai-Sebatta, David Kyaddondo, David Kaawa-Mafigiri, John Barugahare, Jimmy Spire Ssentongo, Shenuka Singh, Erisa Mwaka
Médium: Artigo
Jazyk:Inglês
Vydáno: SAGE Publishing 2026-04-01
Edice:Research Ethics Review
On-line přístup:https://doi.org/10.1177/17470161251361575
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