Pain in recessive dystrophic epidermolysis bullosa (RDEB): findings of the Prospective Epidermolysis Bullosa Longitudinal Evaluation Study (PEBLES)

Abstract Background Pain is common in the genetic skin fragility disorder epidermolysis bullosa (EB), from skin and mucosal injury and inflammation as well as extra-mucocutaneous sites. Individuals living with EB have identified pain as a priority for better treatments. Objectives The Prospective EB...

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Hlavní autoři:	Eunice Jeffs, Elizabeth I. Pillay, Lesedi Ledwaba-Chapman, Alessandra Bisquera, Susan J. Robertson, John A. McGrath, Yanzhong Wang, Anna E. Martinez, Jemima E. Mellerio
Médium:	Artigo
Jazyk:	Inglês
Vydáno:	BMC 2024-10-01
Edice:	Orphanet Journal of Rare Diseases
Témata:	Epidermolysis bullosa Pain Natural history Quality of life Disease severity
On-line přístup:	https://doi.org/10.1186/s13023-024-03349-w
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